This program focuses on developing newborn screening initiatives in low- and middle-income countries (LMICs) through innovative and sustainable strategies. Despite significant advancements in newborn screening globally, LMICs face unique challenges, such as limited healthcare infrastructure, financial constraints, and training barriers, that hinder widespread implementation. The program aims to explore solutions tailored to these regions, emphasizing approaches that leverage both traditional and novel methods for overcoming obstacles to newborn screening.

Prof. Jim Bonham will discuss the potential for expanding newborn screening programs in LMICs, addressing the foundational components necessary for these programs to succeed and adapt to local needs. Dr. Hafsa Majid will then introduce the concept of using virtual learning environments to train healthcare workers on the essential skill of Dried Blood Spot (DBS) collection. This training method offers a scalable solution to overcome geographic and logistical limitations, ensuring that medical staff can access consistent, high-quality training.

Finally, Dr. Lena Jafri will present the development of a rare disease registry, emphasizing its critical role in gathering evidence-based data to shape newborn screening initiatives. By capturing valuable data on rare conditions, these registries inform policymaking and resource allocation, supporting the growth of targeted screening programs. Together, these presentations provide a comprehensive view of how LMICs can implement, expand, and sustain newborn screening programs, ultimately improving health outcomes for newborns across diverse populations.